An organisation created by parents; for parents and their children. Spina Bifida Hydrocephalus Scotland was founded in 1965 (then known as Scottish Spina Bifida Association) by a small group of enthusiastic parents who each had a child with spina bifida.
To address the needs of their children with varying degrees of disability, it was paramount that a National Organisation be formed to speak with one voice and advocate for those needs from a perspective of personal knowledge and understanding. In those early days, local parent groups emerged in various localities throughout Scotland, and each formed its committee, which was represented on a national coordinating committee. As the years progressed, local branches were formed, and although these branches had a significant amount of autonomy, they were ultimately accountable to the National Association’s Management Committee.
50 years on, Spina Bifida Hydrocephalus Scotland’s name now truly represents our current members and reflects the type of support we offer. We employ specialist staff across Scotland to provide a lifetime commitment of information, support and projects to all those affected by spina bifida, hydrocephalus and allied conditions.